I know I haven't written an update in quite some time, but this time tomorrow I'll probably be going down to theatre for my surgery. This will be the last try to obtain skin cover on the tumour defect wound, so that I can begin other sorts of treatments to heal the bone, nerves and the aesthetics (though this is relatively unimportant to me at the moment).
I'm nervous, but I trust that God will look after me, and show my surgeons the light. Pre-operatively, I will get my DDAVP infusion and intra-operatively, two units of blood will be transfused. I have been very anaemic for quite a long time, and I quote that even my haematologist said that I am " very iron deficient". I am due to see him again in a fortnight's time back at the OPD about my platelets and he has already liaised with my surgeon's haematology team (since I'm not having my operation at the same hospital where I see my haematologist).
My surgeon is going to send the anaesthetist up to the ward to set up the lines that I will need. My veins are rather poor and we aren't keen for a nurse to do the job. I've had cannulae in and blood taken from nurses six times this year already and each time has taken them several attempts to get into the veins. Hopefully it won't be too bad tomorrow, I don't know how many lines they will need though, as it seems that I'm having so many things via the IV route. It's probable that I'll just have one, and they'll put a splitter on it (at least this is what I'm hoping for...!).
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Chinese New Year is on Sunday; I hope I'll be home in time to celebrate the day with my family, not in the hospital. It would be the second New Year running that I'll have spent in the hospital. Last year, I was in day surgery by myself as both my parents were working and it was a school day. This year will be the same, but I'll be admitted as an inpatient, but I have my best friends coming to visit me tomorrow evening. I hope I can be well enough to see them.
I don't have a lot more to say for the moment, apart from I wanted to thank all my friends who have supported me throughout these four years. I have grown so much, physically and emotionally and I wouldn't be the same person, had these events not taken place. I'll try to post another update at some stage, but for now - all I know is that I'm in good hands.
Sharing the ups and downs of life as a twenty-something year old medic. I have Ehlers-Danlos Syndrome, postural tachycardia, persistent hypotension, a platelet function defect, gastroparesis and intestinal dysmotility, and am overcoming AVM and osteomyelitis. I am also TPN-dependent. Follow the rest of my journey at www.nogutfeelings.blogspot.co.uk
